To any ladies reading this suffering from endometriosis or adenomyosis let me just say how sorry I am for what we have to go through on a daily basis. I remember the days I would open every article and blog post I could find to try and manage endometriosis. I hope this helps you on your journey to finding a good, working treatment plan. IT IS POSSIBLE TO LIVE A PAIN FREE OR MINIMAL PAIN LIFE.
Disclaimer: As we know everyone’s body is different and reacts differently. I am telling you what has worked personally for ME. Please consult with your doctor before adding in anything new to your routine and do not mistake anything as medical information.
My Road to Diagnosis
From my first period on I’ve always been a heavy bleeder with extremely painful periods. I thought that was normal. NEWSFLASH: IT ISN’T. With the heavy bleeding came excruciating migraines. But thankfully, those migraines were so bad it led me in search of treatment which started this whole process. Now I am one of the google doctors and I was convinced I had a brain tumor and was already supposed to be dead. Obviously that wasn’t the case and my CT scan came back clean. A clean CT scan lead to lots of bloodwork being done. Turns out I was losing so much blood I was required to do iron infusions at my local cancer treatment center because I was severely anemic.
Birth Control Gone Wrong
This prompted me to see a gynecologist to help me stop the bleeding, which means birth control. My mom suffered from endometriosis and we had very good indicators I do as well which we tailored our treatment plan to. My family suffers horribly from cancer, especially hormonal cancer. I have always been opposed to birth control and adding hormones into my system. However, with being severely anemic we had to find a way to stop the bleeding. I was initially put on Lo Loestrin with HORRIBLE side effects. My migraines intensified, bleeding got worse, and overall couldn’t get out of bed because of the severity. I knew an increase in migraines were a possibility but I decided I wanted to try another birth control.
Next up on my treatment plan was Norethindrone. The side effects of Norethindrone were not as severe as the Lo Loestrin however my bleeding still intensified. This prompted us to get an ultrasound where a cyst was found on my ovary. I was told this is normal and it should go away (As you can guess… IT DIDN’T). I was terrified of getting anything implanted in my body so an IUD was out of the question and I am also not a fan of the weight gain that comes with the depo shot so that was a no-go for me as well.
My doctor was very adamant that an IUD would be the best option ahead of birth control pills and I finally decided to give in. LET ME TELL YOU, THAT WAS THE WORST EXPERIENCE EVER. I plan to go fully into detail in a later blog post but I regretted my decision for 6 months. Now I am a sick person, and I was on a medication that did not allow me to take pain meds during the implantation which obviously affected me. It took 2 unsuccessful attempts, 1 numbing shot directly into the vagina and another attempt of MULTIPLE doctors and nurses just going for it for it to finally be done.
Months went by and I was cramping everyday, still bleeding through super tampons and night time pads. THEN IT HAPPENED. My cyst burst but I didn’t have any clue what it was at the time. Easily the worst physical pain I have ever been through in my life. I was driving when it happened and I pulled into my garage and sat there for an hour because the pain was so bad I could not move. Once I finally got the courage to go inside where I laid at the bottom of my stairs for hours. Immediately, I emailed my doctor who ordered a ultrasound first thing the following morning where we discovered the cyst had burst. She said the pain would decimate over the days (As you can guess … IT DIDN’T … do you see this cycle going on here?).
Three weeks went by where I was still in excruciating pain daily, unable to complete my daily tasks. Now I am only 21 and have never been pregnant or given birth. I had no other way to describe the pain other than I felt like I was in labor. I have no clue what labor feels like but my guess it is this horrible. This lead to ANOTHER ultrasound where we found out the cyst had grown triple the original size and was pressing up into my bladder which was why I was having bladder issues. We scheduled EMERGENCY surgery for the following day. She wanted to go in immediately but I needed at least a few hours to get my life in order.
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